
TAKE ACTION
YOUR SUPPORT BENEFITS
THE LIVES OF MILLIONS
OF PEOPLE WITH RARE DISEASES

Target Audience
Rare Disease Day was started by patient organizations and is patient
led. Therefore, the primary drivers and beneficiaries of the campaign are people living with a rare disease.
Our main target audiences are the following:
The general public and the media
Politicians, policy makers and public authorities
Health professionals and caregivers
Researchers, clinicians and academics
Pharmaceutical and biotech industry
We encourage everyone who has an interest in rare diseases
to join the campaign as long as they respect the spirit of Rare Disease Day.
Sarcoidosis of Long Island, Global Genes,EveryLife Foundation, and other organizations to be named later are hosting an event for rare disease awareness in Stony Brook University Hospital on
October 15,2016.
We hope all attend to support rare diseases. For information on rare diseases please check out
http://rareadvocates.org/ or https://globalgenes.org/
For more information of this event feel free to contact us at Frank@sarcoidosisofli.com